Ok, so the Oncologist performed a bone marrow biopsy on me about on February 3. That was none too fun but it wasn't really all that bad. They made me lay on my stomach and they gave me a local in my back around my left hip bone. After it was numb enough he used a tool that essentially cut and removed a core of my bone and bone marrow. Tamara watched him do it and said it looked pretty severe. Apparently the tool looks like a wine cork screw and he really had to bear down on it while turning to get the sample. It was mildly painful and was over pretty quickly. There were really only two times that I felt a good bolt of pain.
I had another appointment with the Oncologist today to get the results. The lab that analyzed my bone marrow printed a multi page report that is very technical and I suspect that an Oncologist would be the only one to really understand it.
My diagnosis is as follows:
Atypical CD8+ T cells with aberrant immunophenotypes (17% of total cells) and atypical natural killer cell lymphocytosis (23% of total cells) are present
My Oncologist said that this is pretty rare and that it is beyond what he is willing to attempt to treat. He has referred me to a doctor at Duke University Hospital.
This is pretty damn scary. The report is extremely complicated and inconclusive about malignancy. What is amounts to is that I am freak of nature and have some strange rare condition that may or may not be benign. I just hope that someone at Duke can start to determine what the hell is going on with my immune system.
The funny thing is that I feel great and don't have any symptoms of anything that would point to problems.
We will wait and see.....
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